Clarkstown, NY – At just 17 years old, Coca Bernard of Clarkstown has already faced more medical challenges than most people encounter in a lifetime. A leukemia survivor and advocate for rare disease awareness, Coca is now channeling his journey into action by organizing the inaugural Coca Strong 5K/10K at Rockland Lake State Park on August 3rd.
Coca was first diagnosed with leukemia at age 13, a life-altering moment that led to two years of intensive chemotherapy treatments at Westchester Medical Center and Memorial Sloan Kettering. Just as he began to recover, another setback arrived. In December 2023, he was diagnosed with atypical hemolytic uremic syndrome (aHUS)—a rare, life-threatening autoimmune disease likely triggered by his prior treatments.
“Everything changed overnight—twice,” Coca said. “But what kept me going was hope and the kindness of others.”

While still adjusting to the reality of requiring lifelong care for aHUS, Coca was approached by Make-A-Wish Hudson Valley, which had been following his journey. At the same time, he ran his first 5K for breast cancer awareness—and something clicked.
“Seeing people come together for something bigger than themselves lit a spark in me,” he said. “It gave me a sense of hope I hadn’t felt in a while and made me think about the families who are battling rare diseases in silence.”
Instead of using his Make-A-Wish opportunity for a personal experience, Coca chose to give back. He envisioned the Coca Strong 5K/10K, a community race to raise money and awareness for families living with rare diseases. With the help of Make-A-Wish, which has fully covered event expenses, nearly 100% of proceeds from race registrations and sponsorships will go directly to Global Genes, a nonprofit supporting those affected by rare genetic conditions.
Set for Sunday, August 3rd from 7:30 to 10:00 a.m. at Rockland Lake State Park in Valley Cottage, the event is expected to draw hundreds of participants from around the region.
Coca has been hands-on from the beginning—meeting with sponsors, creating social media content, designing race shirts and medals, and even recording training videos.
“He’s poured his heart into this,” said a spokesperson from Make-A-Wish Hudson Valley. “It’s more than just a race—it’s a movement of hope led by a young man who’s been through more than most adults.”
Coca’s message is clear: even though rare diseases often go unseen, the people living with them are all around us.
“They deserve just as much support, compassion, and hope as anyone else,” he said.
Event Details:
🗓 Date: Sunday, August 3, 2025
🕢 Time: 7:30 a.m. – 10:00 a.m.
📍 Location: Rockland Lake State Park, Valley Cottage, NY
🔗 [Link to Register or Donate – Available in the Comments Below]
For more information, visit the Coca Strong event page or follow @CocaStrong5K on social media.