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Clarkstown Teen Coca Bernard, Leukemia Survivor, Launches Coca Strong 5K/10K for Rare Disease Awareness

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Clarkstown, NY – At just 17 years old, Coca Bernard of Clarkstown has already faced more medical challenges than most people encounter in a lifetime. A leukemia survivor and advocate for rare disease awareness, Coca is now channeling his journey into action by organizing the inaugural Coca Strong 5K/10K at Rockland Lake State Park on August 3rd.

Coca was first diagnosed with leukemia at age 13, a life-altering moment that led to two years of intensive chemotherapy treatments at Westchester Medical Center and Memorial Sloan Kettering. Just as he began to recover, another setback arrived. In December 2023, he was diagnosed with atypical hemolytic uremic syndrome (aHUS)—a rare, life-threatening autoimmune disease likely triggered by his prior treatments.

“Everything changed overnight—twice,” Coca said. “But what kept me going was hope and the kindness of others.”

While still adjusting to the reality of requiring lifelong care for aHUS, Coca was approached by Make-A-Wish Hudson Valley, which had been following his journey. At the same time, he ran his first 5K for breast cancer awareness—and something clicked.

“Seeing people come together for something bigger than themselves lit a spark in me,” he said. “It gave me a sense of hope I hadn’t felt in a while and made me think about the families who are battling rare diseases in silence.”

Instead of using his Make-A-Wish opportunity for a personal experience, Coca chose to give back. He envisioned the Coca Strong 5K/10K, a community race to raise money and awareness for families living with rare diseases. With the help of Make-A-Wish, which has fully covered event expenses, nearly 100% of proceeds from race registrations and sponsorships will go directly to Global Genes, a nonprofit supporting those affected by rare genetic conditions.

Set for Sunday, August 3rd from 7:30 to 10:00 a.m. at Rockland Lake State Park in Valley Cottage, the event is expected to draw hundreds of participants from around the region.

Coca has been hands-on from the beginning—meeting with sponsors, creating social media content, designing race shirts and medals, and even recording training videos.

“He’s poured his heart into this,” said a spokesperson from Make-A-Wish Hudson Valley. “It’s more than just a race—it’s a movement of hope led by a young man who’s been through more than most adults.”

Coca’s message is clear: even though rare diseases often go unseen, the people living with them are all around us.

“They deserve just as much support, compassion, and hope as anyone else,” he said.

Event Details:

🗓 Date: Sunday, August 3, 2025
🕢 Time: 7:30 a.m. – 10:00 a.m.
📍 Location: Rockland Lake State Park, Valley Cottage, NY
🔗 [Link to Register or Donate – Available in the Comments Below]

For more information, visit the Coca Strong event page or follow @CocaStrong5K on social media.

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Tiffany Haddish Visits Nyack Library with She Ready Foundation

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The Nyack Library welcomed comedian, actress, and author Tiffany Haddish and members of her She Ready Foundation for a memorable visit filled with books, inspiration, and community connection.

Library staff and young readers had the opportunity to meet Haddish and learn more about her children’s book, Layla the Last Black Unicorn. The visit also provided an opportunity to learn about the mission of the She Ready Foundation, which works to support and empower young people in foster care.

The special visit was met with enthusiasm by the Nyack Library community. Haddish’s book gave children an opportunity to connect with a story about identity, courage, and being proud of who you are, while the foundation’s work highlighted the importance of providing young people with encouragement and resources.

The library expressed its appreciation to Haddish and the She Ready Foundation team for spending time with the community and making the day so meaningful.

“A very special thank you to Dr. Gordon, Desiri, and Leeron,” the library shared, noting that the visit was a day the community would not soon forget.

For the children and families who attended, the event was more than a celebrity appearance. It was an opportunity to celebrate reading, storytelling, and the positive impact that community leaders can have on young people.

The Nyack Library also extended its gratitude to everyone who helped make the visit possible.

Photo credit: Aldona Pilmanis

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Back-to-School Photos: Why Parents Should Think Before Posting

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As a new school year gets underway, social media feeds will soon be filled with the familiar first-day-of-school photos: children standing on the front porch with their backpacks, holding signs announcing their grade, and smiling for the camera before heading off to class.

While these photos are a fun way for families to celebrate a milestone, parents should take a moment before posting to consider how much personal information the picture may reveal.

The National Center for Missing & Exploited Children (NCMEC) is reminding families to make online safety part of their back-to-school routine. The organization specifically cautions parents about information that can appear in seemingly innocent school photos, including a child’s full name, school name or logo, teacher’s name, street signs, house numbers and other identifying details.

A photo can also reveal a child’s daily routine or where they spend much of their time.

The Problem Isn’t the Photo — It’s the Information Around It

Parents do not necessarily need to stop sharing their children’s accomplishments and special moments online. The bigger concern is how much identifying information accompanies the photo.

A typical first-day picture could potentially show a child’s name on a backpack or sign, the name or logo of the school, a bus number, a street address or even a recognizable neighborhood location.

Adding a caption such as a child’s full name, age, school, teacher and grade can provide even more information.

NCMEC recommends taking a few moments to examine photos before posting them and removing or obscuring identifying details when appropriate.

Once It’s Online, It’s Difficult to Control

Parents should also remember that social media privacy settings do not guarantee that a photograph will remain private.

The Federal Trade Commission advises people to think carefully before posting because photos and other content can be copied, screenshotted, recorded and shared beyond the audience originally intended. Even deleting a post later does not necessarily mean the image has disappeared from the internet.

That is particularly important when the person in the photograph is a child who may not fully understand the long-term implications of having personal information available online.

A Quick Check Before You Hit Post

Before sharing a back-to-school picture, parents may want to ask:

  • Does the photo show the child’s full name?
  • Is the school name or logo visible?
  • Is a teacher’s name visible?
  • Can someone identify our home or street?
  • Does the photo reveal where or when the child will be?
  • Have I included unnecessary personal information in the caption?
  • Would I be comfortable with this image being copied and shared outside my intended audience?

Cropping a photo, covering identifying information or choosing a less specific caption can reduce the amount of information being shared.

Back-to-school photos are a way for families to celebrate an exciting milestone. A few extra seconds before posting can help ensure that the celebration doesn’t reveal more about a child than a parent intended.

The goal isn’t to take the fun out of sharing these moments. It’s simply to remember that a cute picture can contain more information than it appears to at first glance.

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